TOURETTE’S SYNDROME AND SCHOOL: WHAT TO EXPECT AND HOW TO COPE

TOURETTE’S SYNDROME AND SCHOOL

When your child has Tourette’s Syndrome(TS), life at school can be a challenge. From feelings of embarrassment, struggles with workload, and instances of bullying, school can be a scary place for both you and your child. Establishing good communication, mutual respect, and an overall understanding of the disorder between educators, peers, and your child will …

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MY CHILD HAS TOURETTE’S SYNDROME

MY CHILD HAS TOURETTE’S SYNDROME

Tourette’s Syndrome(TS) is characterized by involuntary vocal and motor tics. It is estimated that as many as 200,000 Americans suffer from the most severe form of Tourette’s Syndrome, and as many as one in 100 display symptoms of milder cases. Facial grimacing, head jerks and twists, hopping, and jumping or bending are all examples of …

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WHAT IS EPILEPSY?

WHAT IS EPILEPSY?

There are over 3 million people living with epilepsy in the United States. Each year in the U.S., there are approximately 150,000 new epilepsy diagnoses. It affects people of all ages and is the fourth most common neurological disorder. So, just what exactly is epilepsy? Epilepsy is a disease associated with repeated, unprovoked seizures. Unprovoked …

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“MOM, WHY DO I HAVE EPILEPSY?”

EPILEPSY

Epilepsy affects around 300,000 children ages 14 and under in the U.S. Every child is affected in different ways. Some children receive childhood treatment for their epilepsy, taper off of medication at some point, and remain seizure-free for many years. Others may have certain, severe forms of epilepsy that may require lifelong treatment. Most childhood …

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COPING WITH DUCHENNE MUSCULAR DYSTROPHY (DMD)

COPING WITH DUCHENNE MUSCULAR DYSTROPHY (DMD)

Duchenne muscular dystrophy or DMD is one of the nine types of muscular dystrophy. DMD is characterized by progressive muscle degeneration and weakness. DMD effects nearly 1 in every 3,500 boys, and is primarily detected during childhood. Understanding the disease is the first step in coping with it. As a parent, it can be challenging to deal with the …

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ARE CLINICAL TRIAL PARTICIPANTS REALLY HUMAN ‘GUINEA PIGS?’

ARE CLINICAL TRIAL PARTICIPANTS REALLY HUMAN GUINEA PIGS

Where did the term “guinea pig” come from? Dating back to the late 1800s, a German doctor by the name of Robert Koch began using these loveable creatures while conducting tests to prove which agents were responsible for bacterial diseases such as anthrax. Guinea pigs proved to be most effective for testing because of their …

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